Author Topic: Please help this poor and suffering Indonesian girl seeking treatment for lukemia at NUH  (Read 2039 times)

Oat1

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4-Year-Old Indonesian Girl With Rare Blood Cancer Needs S$600K For Treatment In S’pore

The funds will go towards a bone marrow transplant and treatment for graft versus host disease.

By Sudeshna Dhar - 28 Feb 2023, 2:32 pm



It can be difficult to watch loved ones suffer as a result of a serious illness.

Unfortunately, this has been the case for the parents of 4-year-old Tiffany Jocelyn.

She suffers from a rare blood cancer and complications from failed surgeries resulted in burns and peeling skin.

As her medical bill has now risen to over S$600,000, her parents are seeking donations to help with the costs.

In their crowdfunding page on GIVE.asia, Tiffany’s parents said she was diagnosed with juvenile myelomonocytic leukaemia (JMML) type NF1 in March 2020.

A type of rare blood cancer that affects young children, it can result in a very low platelet but high white blood count.

They wanted to bring her to Subang Jaya Medical Centre (SJMC) in Malaysia for treatment but couldn’t do so due to pandemic restrictions.









Over time, Tiffany’s health grew worse and she contracted hepatomegaly and splenomegaly, leading to an enlarged liver and spleen respectively. In addition, she developed red maculopapular rashes all over her body.

Two years after the diagnosis, they could finally bring her to SJMC. She went through several rounds of chemotherapy and doctors prepared her for a bone marrow transplant from a donor in Taiwan.

However, the chemotherapy caused Tiffany to develop multiple complications. This included swollen eyes, high fevers, anus infections, and allergies.

Eventually, she had to be admitted to the neonatal intensive care unit (NICU).

In August 2022, Tiffany was finally able to undergo a bone marrow transplant.

Unfortunately, the operation caused her to have a high fever and diarrhoea for two weeks and eventually failed as it could not engraft.

Her cancer also remained and her spleen grew in size.

Alongside continuous blood transfusions, Tiffany had to receive irradiation treatment for her body and another chemotherapy session for her second bone marrow transplant.

The operation occurred in November 2022, giving rise to graft versus host disease (GvHD), which included symptoms such as high fever and diarrhoea.

The fever caused her to sustain fits and the diarrhoea resulted in painful cramps, requiring morphine for more than three weeks.

In January this year, more GvHD symptoms affected her skin and stomach.

She began suffering from burns, bleeding, and peeling skin all over her body. The left side of her brain, ear, nose, throat, and mouth became inflamed as well.

She was unable to get up, sit, speak, or fully turn her head to the left and was bedridden for a month.

Needs funds to cover costs in NUH
The doctor in SJMC eventually recommended a transfer to the National University Hospital (NUH) in Singapore for further treatment.

According to Tiffany’s mother, the treatment for GvHD is estimated to cost around S$300,000 to S$350,000.

Furthermore, the bone marrow transplant afterwards will cost at least S$300,000.

With how much they’ve already spent on all the treatments in Malaysia, Tiffany’s family is finding it difficult to cover the costs in Singapore.

“My husband had to borrow money from his relatives and siblings, and we sold our properties and belongings to cover bill payments in SJMC,” explained Tiffany’s mother, who states that she is from Indonesia in her GIVE.asia profile.

Her husband runs a small business in their hometown, but the income is hardly enough to pay for treatment.

They have also been away from their second daughter in their hometown since March 2022.

“We are still unable to return to our normal routine until now,” the mother shared, adding that they’ve had to sacrifice their time, job, and home because of this ordeal.

They will need at least S$600,000 to afford the bone marrow transplant and GvHD treatment for Tiffany.

https://mustsharenews.com/girl-cancer/
https://give.asia/campaign/give-tiffany-a-chance-to-fight-rare-disease?#/
https://give.asia/campaign/give-tiffany-a-chance-to-fight-rare-disease/donate?#/amount
« Last Edit: March 04, 2023, 08:14:08 pm by Oat1 »
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Syzthesis

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This is solely a sole intention of goodwill from myself (syzthesis) to any members who have donated more than $100 to help the girl herein mentioned - Tiffany Jocelyn. Please contact me separately by directly dm myself within the forum, I will arrange for one amulet to be given to you, one time basis per donor. Rules of engagement applies herein;
1. Do not ask for a certain model of amulet, it is at my own discretion what amulet to give to you as a goodwill basis.

2. Do not ask me what details of the amulet, or to provide authenticity of the amulet.

3. Please respect the intention of the amulet giving, as it is to thank you for being selfless, it is not a value-for-value trade.

Thank you - Syzthesis.
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Oat1

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Sycthesis you are a male angel. Thank you for stretching out your helping hand! I wish you big fu big kwee, long life hundred years old, children grandchildren whole hall.
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Syzthesis

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Thanks @Oat1 bro. I am just doing what I can do to help, I am not male angel la. Thanks for the compliment.

Sycthesis you are a male angel. Thank you for stretching out your helping hand! I wish you big fu big kwee, long life hundred years old, children grandchildren whole hall.
« Last Edit: March 06, 2023, 07:59:06 pm by Syzthesis »

Valen

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Thanks @Oat1 bro. I am just doing what I can do to help, I am not male angel la. Thanks for the compliment.


Ahhh...so you female angel

Syzthesis

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You should know what gender I am, @Valen ;)


Ahhh...so you female angel

Oat1

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oh sorry I didn't know sycthesis is charbor

Syzthesis

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No, you are correct. I am a Tah Bor Kia. :D

oh sorry I didn't know sycthesis is charbor

Valen

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You said you are not male angel